Hi! My name is Maggi Blair. I was born with CRANIOSYNOSTOSIS and was diagnosed at 14 months old with TRISOMY 9 MOISAIC SYNDROME. Today I am saying "mama" and have 7 teeth, with the 8th one coming in. I weigh almost 18lbs and am 28" long! Wow!
Hello!! Thank you for visiting my website and blog!! I've got some cool photos, too...
I'll be leaving messages every week (maybe 4 or 5 a week) so keep my site in your favorites!! Check it regularly... and SAY HELLO every now and again!!
You can leave comments on each blog entry, so feel free to do that. I love communicating with people... especially my mommy and daddy!!
Come back often!!
Love,
Maggi
posted by Maggi Blair @ 12:59 PM
I was born on April 18, 2005. I have a condition known as Craniosynostosis. It's a deformation of the head due to one or more of the sutures in the skull closing prematurely. I will be having surgery on August 18, 2005 to fix it.
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