Maggi Blair - News & Updates

Hi! My name is Maggi Blair. I was born with CRANIOSYNOSTOSIS and was diagnosed at 14 months old with TRISOMY 9 MOISAIC SYNDROME. Today I am saying "mama" and have 7 teeth, with the 8th one coming in. I weigh almost 18lbs and am 28" long! Wow!

Monday, September 19, 2005

5 Months Old!


Hi, Friends & Family!

Yesterday I turned 5 Months Old! Isn't that great? The older I get, the better I feel and only if I could cut these teeth in...I think mom would like some sleep! Did you know that Jay Leno comes on at 11:30pm and a Leno re-run comes on at 3am??? Just ask mom, she knows all of the late night shows. Conan is her favorite.

Look at my HaPpY FaCe! Mom and Dad put all of the stuffed animals around me (that were given to me by friends and family) and placed me on my favorite pillow from Miss Rainy! The crocheted shawl is also in the picture...the sweet women of Fairburn United Methodist Church made it for me. How special are all of the gifts in this picture! See how happy I am?

Tomorrow we have an appointment with Dr. Goza for my four month shots. Also, I will have my check-up! I am sure I will impress Dr. Goza with how much I have grown. I hope daddy doesn't aggrivate Miss Wendy again! He always makes her laugh when we visit.

We have been super busy lately. Daddy has been working really hard at promoting his business and mommy has been going to Miss Rainy's to do a little bit of work, here and there. We didn't make it to church this weekend because I wasn't feeling too well. Guess you can say I am a night person. So, maybe one day I can learn to sleep on a schedule, I am sure it will help my parents out a lot. They are working so hard to start their own business from home so they can take care of me. Things are starting to picking up. Wish them luck!

I love all of you so much!
Maggi

Wednesday, September 07, 2005

No More Staples!


Guess what? I had my staples removed on Friday, 9/2/05! Dr. Stevenson was really impressed with how great my incision looked. He said that I can go swimming now! Who is he kidding? My one piece has been ready to go for a while now! I can't wait to get into my Mimi's hot tub and relax, this surgery was harder than I made it look!
Thank you for all of your prayers, not only did I heal well, but I look gorgeous! Please add some of the church family to your prayers for me. All of these nice people have been so good to my family. There has been injury, illnesses, death in the family, a new baby, and a house fire. Also, we are all praying for the victims of the hurricane...we know how lucky we are. God takes care of His children and I know that He works miracles!
So, let's all keep praying really hard!
Y
Lawrence & Ann Jacobs
Roy & Barbara Hand
Kelly (new mom) & Brock (new baby)
Arthur Cox
Rueben Kinsey
Family of Steve Wallis
Margaret & Ernie Saunders
I LOVE ALL OF YOU!

Thursday, September 01, 2005

Looking Better!


Don't I look happier? The surgery has helped me feel so much better, I think I hear and see everything more clearly than I used to! You know how I know??? I keep wiggling, smiling, kicking, and not sleeping! Yep! I am keeping mommy and daddy up until 2am, most nights...I was missing out on life before, so I have a lot of catching up to do.

I am feeling better, but gave my mom a real scare this morning. My heart monitor went off three times and she had to get me to catch my breath by shaking me...it terrified her because I was really cold and in a deep, deep sleep...I just wouldn't wake up! But, finally, she put me in the bed with her and wrapped me up in the covers to warm me up! So, I decided to wake up and play, eat, and take my medicine.

Just when we all think the hardest part is over, I guess we realized I still have some challenges to face...so, continue praying for me. My mom and dad are always giving their testimony about the power of prayer to everyone they see...even COMPLETE STRANGERS!

I love all of you and can't wait for you to see my new pictures on Miss Rainy's website, they are of me and my new look!!! In one of the pictures, I am smiling so big and throwing my arms up...boy, I look CUTE!

Just use the same password and website: www.imagesbyrainy.com
Click onto: CLIENTS
Click onto: Donna Blair 8/30/05
Password: blair

DO YOU SEE ME? WHAT A MAJOR DIFFERENCE IN HOW I LOOK? MY EYE LOOKS SO MUCH BETTER! We took the portraits yesterday. I love Miss Rainy, she sure is good with kids like me...she is gentle.

MUCH LOVE TO ALL OF YOU!
Maggi