Finally, an Update!

Well, we have been so busy with all of Maggi's annual check-ups with all of her specialists that we have not had time to udpate the site!

We just celebrated her first birthday with family, friends and church. Maggi didn't get to eat cake, but she loved the icing! She did great around everyone and never cried...she is such a great spirit. We are beginning to think she loves to be in the spotlight.

Here are some updates...

Genetics: We finally got the bloodwork sent off for testing. It will take another four to six weeks to get any results. Dr. Uhas is certain Maggi has a syndrome, however, the fistula (tear duct outside of the eye) is pretty rare and she said that there is a possibility that there is not a name for what she has yet...but, we pray that we get some type of answer.

Orthopedics: May 18th we will be taking Maggi to Orthotics to be casted for her two braces. This is going to be the most challenging part of her care yet. Poor thing will have wear one at night during sleep and the other during waking hours...another words, 24/7 for maybe up to one year.

Physical Therapy: What can we say? WE LOVE IT! We have gotten over watching her struggle, but she is really blossoming. She is loud with laughter and holding herself up straighter when she is in your arms. We adore Miss Debbie!

Speech Therapy: Maggi still hasn't gotten down what it is to CHEW, but she is eating more and that is a great thing. Tonight she ate two 4oz. jars of food and then 3 oz. of formula! She has a little frog belly and Miss Heather will love that!

Pediatrician: Maggi did great at her one year, cried with her shots, but Dr. Goza says that Maggi is looking better and better. Dr. Goza feels like we do...she sure has had a hard year. Her weight is in the 3-5 percentile and her head is in the 96th...so, imagine how hard it must be for her to be so underweight and holding up such a heavy head.

Be sure to look at the photo album. We love all of you and hope this finds you well!

Donna & Patrick