Maggi Blair - News & Updates

Hi! My name is Maggi Blair. I was born with CRANIOSYNOSTOSIS and was diagnosed at 14 months old with TRISOMY 9 MOISAIC SYNDROME. Today I am saying "mama" and have 7 teeth, with the 8th one coming in. I weigh almost 18lbs and am 28" long! Wow!

Sunday, February 19, 2006

My Surgery


My surgery for the TETHERING of the SPINAL CORD went fabulous! I did so great that I was able to go home the next day. Dr. Stevenson said that we may see immediate improvements in me and sure enough, when we got home, I did something I have never done before! Aunt Belinda made me an adorable teddy bear and I saw her in my crib. I got so excited that I made a really big surprise face and sound! Well, I have never done that!

During my surgery they put some type of protective plasticy thingy on my back and I had an allergic reaction to the glue in it, which made me blister up. The blisters look worse than the cut Dr. Stevenson made to fix my filum....wow, I love big words! So, mommy and daddy are getting those little blisters to heal around my cut and I am feeling lots better.

Thank you for all of your prayers, I have gained so much strength from your love. My parents love getting your emails, too! They read them to me and are going to put them all together in a memory book for me. Wow, I must be pretty special, huh?

Much Love to EVERYONE!
Maggi

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