Maggi Blair - News & Updates

Hi! My name is Maggi Blair. I was born with CRANIOSYNOSTOSIS and was diagnosed at 14 months old with TRISOMY 9 MOISAIC SYNDROME. Today I am saying "mama" and have 7 teeth, with the 8th one coming in. I weigh almost 18lbs and am 28" long! Wow!

Friday, January 13, 2006

Maggi and Her Helmet!


We got my helmet!
It is taking some getting used to, but I don't mind it. I think I look like a real cute race car driver, don't you? Well, I should have to wear this for about three months. It only adds a little bit of weight to my head, it is just bulky. I rub it in the front when I am sleepy.

Happy New Year to everyone and look at my photo albumn! New pics from the holidays are there for you to see!

I LOVE ALL OF YOU TONS!
Maggi

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