Hi! My name is Maggi Blair. I was born with CRANIOSYNOSTOSIS and was diagnosed at 14 months old with TRISOMY 9 MOISAIC SYNDROME. Today I am saying "mama" and have 7 teeth, with the 8th one coming in. I weigh almost 18lbs and am 28" long! Wow!
Saturday, October 29, 2005
Pumpkins, Pumpkins, Oh My!
New Pics of me in the pumpkin patch! Look at me sitting with all of these wonderful balls of orange! Check out my photobook under PUMPKIN PATCH!
I was born on April 18, 2005.
I have a condition known as Craniosynostosis. It's a deformation of the head due to one or more of the sutures in the skull closing prematurely. I will be having surgery on August 18, 2005 to fix it.
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