Maggi Blair - News & Updates

Hi! My name is Maggi Blair. I was born with CRANIOSYNOSTOSIS and was diagnosed at 14 months old with TRISOMY 9 MOISAIC SYNDROME. Today I am saying "mama" and have 7 teeth, with the 8th one coming in. I weigh almost 18lbs and am 28" long! Wow!

Wednesday, October 19, 2005

Health Update


Maggi's Scoliosis and Seizures

On Monday, 10/17/05, we took Maggi to Scottish Rite to see the Orthopedic Specialist about her Scoliosis.

X-rays were done and this is what was found:
Maggi has a curvature in the Thoraxic Region of 39%

An MRI is scheduled for 11/15/05 to make sure that the brain stem is not being affected and that the central nervous system is fine. He is very positive, as are we.

We also saw the neurologist that is calling Maggi's seizures on 10/8/05, "spells" and that to watch her. At this point, no cause for alarm because she is behaving super and her examination was wonderful. Sometimes with Reflux, it can cause seizures or a child look like they are having seizures. We will follow up with Gastrointestinal next Friday.

Keep her in your prayers and always, let us know if you need anything...we know somebody who has a deep, strong, sweet connection with God... and she will pass on anything you need in her little prayers!

Much Love,
Donna

2 Comments:

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At 8:56 PM, Anonymous Anonymous said...

Hi Maggi -it's me Madelyn! Just wanted you to know that you're always in our prayers and we think about you all the time! Hug your Mommy and Daddy for us! Love, Madelyn XO XO XO

 

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