How am I doing now???

Happy October to all of you!

We wanted to update you on Maggi's progress. She said it was okay for us to say a few things. We took Maggi to a follow up visit to the neurologist, last week. We weren't too thrilled and are looking to get a second opinion. The follow up was for the visit Maggi had at Scottish Rite, when she was admitted on June 14th, due to not breathing. That was the scariest event of Maggi's health, thus far. We learned later, after speaking with a few of the specialists that treated her there that week, that Maggi was in a great deal of trouble. We now know how lucky we are that she is still with us...has had her surgery and is progressing as well as she is.

There was the incident of the morning that she quit breathing three times within one hour and couldn't wake up. It appears that she more than likely had a seizure. This is what we are currently searching for a neurologist to have examined. It is terrifying, but believe me, I know my little Maggi and I could tell she was in trouble that morning and even after that, I have had a couple of occassions where she appeard to be having a seizure. So, we must get that checked out and only by the best!

Our other concern is Maggi's scoliosis. She was diagnosed in May, along with her craniosynostos...at the time we were so emotional over the cranio issue, that I didn't even comprehend her scoliosis. So, it has taken us until this past month to realize that she had the curve in her spine and brought it up to her pediatrician. Dr. Goza (pediatrician), suggested that we see an orthopedic specialist, which we will be doing this month. Her scoliosis is in the thoraxic region and can be the most difficult to treat. So, we also have learned that scoliosis can contribute to her not breathing...which makes a lot of sense to us!

Maggi is throwing up with her reflux much more, as of late. We are still treating her with Prevacid and have added Mylanta for the burning pain she gets. It really has helped. But, we will be contacing Dr. Lewis' office tomorrow to see if we need a visit with him.

GREAT NEWS about Maggi! She is blossoming developmentally and it is such a joy to see her reaching for toys, our faces and for our hands to hold. I can't tell you what a big difference that is. There is so much personality in this little girl, just waiting to burst out! We want to thank everyone for their prayers. Please continue to ask God to watch over us, we hope that we can start attending church on a regular basis, again. I miss singing in the choir so much and being in our Sunday School Class with Greg Shaw. Our music minister is so uplifting, Mr. Mark Karki, he is always sending out the most amazing emails. So, we want to move on from reading these great emails, to actually attending the church and being a part of our family there.

Much Love to All of You...remember that there are children out there in much more need than our little Maggi and we feel so blessed that her health can be addressed and treated. It is difficult for any parent, no matter what level of severity their child's health is...most of us aren't doctors or nurses and we have to trust these professionals with our children and sometimes we don't get the best of care. Hopefully other parents are half as lucky as we have been...we have been blessed with some great specialists thus far and if anyone comes into Maggi's path that isn't on top their game, well...they are out. We trust our gut instinct and our hearts...we trust God more than anything. So, continue to pray for us and for those other sick children that may be living on their last shred of hope. We ache so much for what their parents must be going through. We have seen so much having been at Scottish Rite.

God Bless Each of You and All of Love Goes Out to You and Your Families!

Donna & Patrick