Hi! My name is Maggi Blair. I was born with CRANIOSYNOSTOSIS and was diagnosed at 14 months old with TRISOMY 9 MOISAIC SYNDROME. Today I am saying "mama" and have 7 teeth, with the 8th one coming in. I weigh almost 18lbs and am 28" long! Wow!
Saturday, March 18, 2006
Eating Like a Big Girl
Look at me, eating a cookie! It sure is good! My top tooth is coming in and it sure does feel good to rub it on my gums!
I was born on April 18, 2005.
I have a condition known as Craniosynostosis. It's a deformation of the head due to one or more of the sutures in the skull closing prematurely. I will be having surgery on August 18, 2005 to fix it.
2 Comments:
Interesting website with a lot of resources and detailed explanations.
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What a great site, how do you build such a cool site, its excellent.
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