Maggi Blair - News & Updates

Hi! My name is Maggi Blair. I was born with CRANIOSYNOSTOSIS and was diagnosed at 14 months old with TRISOMY 9 MOISAIC SYNDROME. Today I am saying "mama" and have 7 teeth, with the 8th one coming in. I weigh almost 18lbs and am 28" long! Wow!

Sunday, November 13, 2005

Maggi's New Friend


Harrison and Maggi

Harrison is the son of my friend, Christy. We were able to meet one another a couple of weeks ago near Christy's work. Christy and Harrison have not been able to meet Maggi yet, like many of you, because Maggi has been sick. Let me just say, Harrison loved her! He was so sweet and gentle with Maggi and she responded to him like she already knew him. Harrison wanted to go home with us and got in the van...oh, how funny that was! Christy gave Maggi some of Harrison's clothes, which she is wearing almost all of the time. Also, Harrison had a lot of cool toys for Maggi to bring home with her and she is playing with everything! Isn't Harrison a cutie pie!!!

If you want to see more pictures, we have a photo album with Harrison and Maggi! "Hi, Harrison and Christy!"...it was great seeing you and we really appreciate the goodies!

Donna, Patrick and Maggi

MRI & CT SCAN


We were able to schedule Maggi's MRI and CT Scan on the same day at Scottish Rite, so she will only have to be sedated one time.

MRI/CT Scan Date: December 12th @ 11am

The MRI is going to be a view of the Brain w/o Contrast. This will help orthopedics determine if the brain/central nervous system is being affected by the scoliosis.

The CT Scan is for the neursurgeon and plastic surgeon to see how Maggi's skull/brain are shaping and developing since her surgery in August.

Please keep her in your prayers. We are anxious to get this done so that we may learn more about Maggi's progress and scoliosis...also, so we will know what to expect next. She has been very sick with a cold, so we had to reschedule the MRI.

Hope all is well with everyone! We just can't believe the Holidays are approaching so soon! Here is a link to Scottish Rite's website, so you can learn a little bit about scoliosis!
http://www.choa.org/default.aspx?id=1536

Much Love,
The Blairs