Sunday School!

I LOVE CHURCH!

This past Sunday I showed up to hang out with two boys! Mommy stayed with me while daddy played his trombone in the orchestra. We had so much fun playing. Haden can pick up big toys!

Thank you Miss Barbara for holding me in the rocking chair...it was so sweet!

I LOVE ALL OF YOU!
Maggi

Maggi Diagnosed with Trisomy 9 Moisaic Syndrome

We attended Genetic Counseling at the end of May and discussed Maggi's diagnosis. Maggi's Chromosome 9 tripled itself during the seperation of cells during conception...there are 16% of 300 cells that carry the triple Chromosome 9. This is what we have been waiting for...the answer to the big picture of small tiny pieces of sicknesses.

Trisomy 9 Moisaic Syndrome typically means short life expectancy, however, Maggi is the first with the lowest percentage of 16, which means we can't determine how long she will live...we just know she is 84% NORMAL! There are many symptoms of this, so I have included a web link:

www.trisomy9.com

Please keep Maggi in your prayers. We have been trying to get her casted for her back braces she'll wear for one year to maintain the scoliosis and insurance has not cooperated too well. We are on a two week wait, at least for now. Also, Maggi is expected to walk, but we don't know when. A seating system will be designed and fitted for her with the back brace, so pray that insurance goes through on those items, too.

I will discuss in further detail later on Maggi's Genetic findings of her Trisomy 9 features.

We love you all and wish we had better news. We assure you Maggi is a fighter and has cut her 8th and 9th teeth this weekend! She is saying "MAMA" like crazy and flipping around the floor...rolling over completely is next~

We love you all,
Donna

Laughing Matters Benefit Show

Wow, what a wonderful response we had with our auctioned items, so a BIG THANK YOU to everyone who donated and participated in the purchasing. The cast of all men brought many laughs to everyone there. This was a fun night to be out, relaxing and giving insight of Trisomy 9 Moisaic Syndrome to the fans of Laughing Matters. We raised almost $900.

THANK YOU to LAUGHING MATTERS, Tommy Futch, Robert Drake, Sloan Hayes, Gary Anthony Williams, Mark Harris, Mark Farley, Mike Schatz, and Jamie! Oh, and don't forget Manuel's Tavern, too!

We appreciate everyone coming out and hope you spread the word around when we have the next one!

We love you all!
Donna, Patrick, Maggi, Zack and Michael

New Website on the Way!

Hi, everyone! Daddy is working on my website and it has the cutest picture of me sucking my passy! This is new and improved and will be fun for all of you with links, pictures and my old blog stuff, too!

Stay tuned and bare with us, my daddy is working so hard! I LOVE HIM!

Maggi

Brothers & Cousins, Oh My!

LOOK at how happy we are, all cuddled up on mommy and daddy's bed. These kids were so sweet to me and helped out a lot! They made me laugh so hard and I can't wait for Kala, Evan, Brooke and Melany to come again. Zack and Michael are my big brothers and I get to see them every other weekend...they are a blast! I LOVE THEM ALL!