Maggi Blair - News & Updates

Hi! My name is Maggi Blair. I was born with CRANIOSYNOSTOSIS and was diagnosed at 14 months old with TRISOMY 9 MOISAIC SYNDROME. Today I am saying "mama" and have 7 teeth, with the 8th one coming in. I weigh almost 18lbs and am 28" long! Wow!

Friday, July 15, 2005

New news from the Nephrologist...


My Nephrologist called today (she's the doctor that's been monitoring my blood pressure). As you may (or may not) know, I've been off my blood pressure medicine (Captopril) for about two weeks, now. We have a nurse (Nurse Pat) that comes to our house twice a week to check my blood pressure, weight and temperature. When the doctor called today, she said that my blood pressure has been looking so good, that we don't have to have the nurse come out anymore!! That's great... but I'm going to miss Nurse Pat. She's really sweet to me.

So it looks like I'm doing better and better every day, huh? I can't wait to get my surgery over so that I can be done with it!!

Keep praying for me!!

Love,
Maggi

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