Hi! My name is Maggi Blair. I was born with CRANIOSYNOSTOSIS and was diagnosed at 14 months old with TRISOMY 9 MOISAIC SYNDROME. Today I am saying "mama" and have 7 teeth, with the 8th one coming in. I weigh almost 18lbs and am 28" long! Wow!
Hey!! My geneticist called a little while ago... seems the test results from the "Syndrome Test" (the test they did to find out if what I have (Craniosynostosis) is a result of a syndrome or not)... It's negative!! They will have to do another test when I'm a year old just to be sure, but that's ok with me... cause right now I'm doing great!!!
Love,
Maggi
posted by Maggi Blair @ 3:32 PM
I was born on April 18, 2005. I have a condition known as Craniosynostosis. It's a deformation of the head due to one or more of the sutures in the skull closing prematurely. I will be having surgery on August 18, 2005 to fix it.
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