Hi! My name is Maggi Blair. I was born with CRANIOSYNOSTOSIS and was diagnosed at 14 months old with TRISOMY 9 MOISAIC SYNDROME. Today I am saying "mama" and have 7 teeth, with the 8th one coming in. I weigh almost 18lbs and am 28" long! Wow!
Monday, July 18, 2005
Three Months Old
Whoo Hoo! Three months old on 7/18/05!
My weight is all the way up to 10 lbs. 10 oz.
My mommy dressed me up to take some cute pictures of me to put into my scrapbook, and there is one of me in my birthday suit!
I was born on April 18, 2005.
I have a condition known as Craniosynostosis. It's a deformation of the head due to one or more of the sutures in the skull closing prematurely. I will be having surgery on August 18, 2005 to fix it.
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