Maggi Blair - News & Updates

Hi! My name is Maggi Blair. I was born with CRANIOSYNOSTOSIS and was diagnosed at 14 months old with TRISOMY 9 MOISAIC SYNDROME. Today I am saying "mama" and have 7 teeth, with the 8th one coming in. I weigh almost 18lbs and am 28" long! Wow!

Saturday, July 23, 2005

Maggi's Prayer Requests


Nonnie
We ask that you keep Nonnie in your prayers. Nonnie is always giving me and my brothers neat little gifts. Nonnie's grown up name is Robertine Mitchely. She had surgery today and we pray for a swift recovery. We love her very much! Hey Mitchely Family!
Maggi, Camille, Cindy
While we were at Scottish Rite today, for pre-op, mommy met a sweet lady, Camille. Camille is the grandmother of a little girl named, Maggi! Isn't that neat? We have the same name and were both named after wonderful women in our families. Cindy is Maggi's mom. Maggi had surgery on her tonsils. We pray that Maggi heals well and that the family gets through this difficult time. Camille was very sweet to me and my mom.
It is great how we are meeting so many other families
through all of this at Scottish.
They are all so caring and understanding through
this difficult time. They also are worried like us.
God Bless All of the Children of the World!
MADELYN
Wow! We have met a wonderful family that has really made mommy feel better tonight. Thank you to Miss Shana and her story about her daughter, Madelyn. Madelyn had surgery with the same neurosurgeon that will be performing mine, Dr. Stevenson. Madelyn's parents are offering us lots of support and she has two older sisters! They have even sent us pictures of their little girl, she sure is beautiful! Keep them in your prayers, they have such wonderful hearts and we are very thankful to them. 8/2/05
Please pray for my Mommy's New Friend!
Mommy has been talking to a really nice lady who has a 2 1/2 year old with craniosynestosis and some other health problems. They are giving each other support.
Say a Prayer for Gabriel!
He is 2 1/2 and has Craniosynestosis, Reflux, Kabuki Syndrome, along with other issues
He has had 5 surgeries and his Mom and Dad are taking GREAT CARE of HIM!

Thank you to Gabriel's mommy for helping my mom during this tough time. My mom said she is really blessed to have her to talk to. God puts special people in our lives everyday, so, we always have hope.


My parents attend McDONOUGH ROAD BAPTIST CHURCH and everyone has been praying for me. We will be sure to add Gabriel to the prayer list at church.



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