Maggi Blair - News & Updates

Hi! My name is Maggi Blair. I was born with CRANIOSYNOSTOSIS and was diagnosed at 14 months old with TRISOMY 9 MOISAIC SYNDROME. Today I am saying "mama" and have 7 teeth, with the 8th one coming in. I weigh almost 18lbs and am 28" long! Wow!

Wednesday, August 10, 2005

My Family's Gift of Love


My family recently got together for the annual Family Reunion. Everyone pulled together and gave me a Love Basket. There were so many beautiful cards and donations toward my fund. We were so happy and thankful to each of them that gave so graciously.

Next time I see all of my family, I am going to be a new little girl...I won't look the same and I will be healthier! It is going to be so nice to let everyone kiss me and hug me.

God always answers prayers. He always provides when you need it. My whole family really helped us in a time of need, we were so thrilled. Here is a poem mommy found that says a little bit about how it made them feel...


My Family Are My Caregivers

Our family is the greatest, this I know is true;
You've helped me with my illness, there's nothing you won't do.
No matter when I need you, you've always been right there;
Through thick and thin, good and bad,
your love you freely share.
On the days when I am down, Feeling blue and wearing a frown,
Someone always makes me feel better
With a smile, a hug, or a very sweet letter.
Thanks to you, I never feel alone,
And as a person I know I've grown.
We've come a long way and I want you to know;
I treasure the way that your love always shows.

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