Maggi's Prayer Requests

Nonnie

We ask that you keep Nonnie in your prayers. Nonnie is always giving me and my brothers neat little gifts. Nonnie's grown up name is Robertine Mitchely. She had surgery today and we pray for a swift recovery. We love her very much! Hey Mitchely Family!

Maggi, Camille, Cindy

While we were at Scottish Rite today, for pre-op, mommy met a sweet lady, Camille. Camille is the grandmother of a little girl named, Maggi! Isn't that neat? We have the same name and were both named after wonderful women in our families. Cindy is Maggi's mom. Maggi had surgery on her tonsils. We pray that Maggi heals well and that the family gets through this difficult time. Camille was very sweet to me and my mom.

It is great how we are meeting so many other families

through all of this at Scottish.

They are all so caring and understanding through

this difficult time. They also are worried like us.

God Bless All of the Children of the World!

MADELYN
Wow! We have met a wonderful family that has really made mommy feel better tonight. Thank you to Miss Shana and her story about her daughter, Madelyn. Madelyn had surgery with the same neurosurgeon that will be performing mine, Dr. Stevenson. Madelyn's parents are offering us lots of support and she has two older sisters! They have even sent us pictures of their little girl, she sure is beautiful! Keep them in your prayers, they have such wonderful hearts and we are very thankful to them. 8/2/05

Please pray for my Mommy's New Friend!
Mommy has been talking to a really nice lady who has a 2 1/2 year old with craniosynestosis and some other health problems. They are giving each other support.

Say a Prayer for Gabriel!

He is 2 1/2 and has Craniosynestosis, Reflux, Kabuki Syndrome, along with other issues

He has had 5 surgeries and his Mom and Dad are taking GREAT CARE of HIM!

Thank you to Gabriel's mommy for helping my mom during this tough time. My mom said she is really blessed to have her to talk to. God puts special people in our lives everyday, so, we always have hope.

My parents attend McDONOUGH ROAD BAPTIST CHURCH and everyone has been praying for me. We will be sure to add Gabriel to the prayer list at church.

www.mcdonoughroad.org

My Surgery & Health

Well, all of you know that I have had a tough time since I was born. I started out in NICU for almost three weeks and I got to go home Mother's Day Weekend! Once I was home, I had tons of doctor's appointments. These are the kind of specialists I have seen since then:

• Nephrologist - for my hypertension
• Plastic Surgeon - for my surgery in August
• Neurosurgeon - for my surgery in August
• Geneticist - to test me for syndromes...which are all negative
• Gastrointestinal - for my acid reflux
• Occupational & Speech Therapist - for my feeding problems
• Nutritionist - for my feeding problems and weight gain
• Cardiologist - to make sure my hypertension was not affecting my heart
• Neurologist - to make sure my brain was functioning properly

Mom and Dad are usually driving me around two to four times a week for these appointments! We are lucky to have Dr. Lewis with Scottish Rite practicing at the new hospital in Fayetteville! It only took 15 minutes to get there for my appointment on Friday and he said I was doing GREAT! Hopefully my reflux will go away by age 9 months.

Now that I am three months old, I am growing and gaining weight. The specialists are doing surgery at four months of age because my blood platelet level will be ideal for surgery and the skull will be easier to work with then. But, as I grow, my skull is putting pressure on my brain and sometimes it causes me to have more drainage and I choke. Mom and Dad keep me suctioned and clear all of the time. They take my temperature everyday to make sure I am alright. When I had to go to the pediatrician this week, Mom & Dad thought I had an ear infection because I was pulling at my right ear. But boy, I fooled them...I had just discovered my ears and was playing! So, it was really good news.

Please know how much I love my Mommy, Daddy, and my Family! They are smothering me with kisses and spending a lot of time talking to me so that I can progress more in my development.

GIGGLED!
YES! I GIGGLED for the first time on 7/22/05! I laughed again for mommy today, also! I am feeling better because I have so much love and someone around to always take care of me and give me my medicine (and kisses and kisses and kisses).

PREVACID
Right now I am only taking Prevacid. I used to be on four different medications and had to be on a really tough schedule of meds. It was hard on all of us and I was always sleepy. Now, I am alert and can interact with everyone. (thank you Dr. Lewis!)

HEART MONITOR
When I got home from Scottish Rite on June 17th, the nephrologist had a Heart Monitor sent to my home so that it would help my Mommy and Daddy know when I stopped breathing for more than 20 seconds. Luckily, I have only gone into APNEA four times and my heart rate has only shown as being SLOW, once! Usually I wear this IF my parents take me somewhere in the van and I ALWAYS wear it at night so it can alert them when they are sleeping. The only thing I DO NOT LIKE about it, is that it rubs me red on my skin! But, Mommy puts some A&D ointment on me to ease the redness.

LINK::
Children's Hospital of Atlanta/Scottish Rite
www.choa.org

Three Months Old

Whoo Hoo! Three months old on 7/18/05!

My weight is all the way up to 10 lbs. 10 oz.

My mommy dressed me up to take some cute pictures of me to put into my scrapbook, and there is one of me in my birthday suit!

I love all of you, thank you for your prayers!

Great weekend with my brothers!!

My brothers love me so much!! ...and I love them, too!!! They are so sweet to me... They were here for a visit this past weekend, and they loved on me every time they got near me... Isn't it sweet??

Also, the auctions on eBay have ended. So that you don't have to try and track down everything, I will tell you what everything sold for...

Scott Miller & Commonwealth T-Shirt (house band for Blue Collar TV)- (there were 2) 1- $6.00, 2- $6.50
Blue Collar Comedy Tour CD (autographed by Jeff, Bill and Larry)- $36.00
Blue Collar Comedy Tour DVD (authgraphed by Jeff, Bill and Larry)- $31.00
Larry the Cable Guy talking doll (autographed)- $41.02
Bill Engvall talking doll (autographed)- (there were 2) 1- $6.25, 2- $15.55
Jeff Foxworthy talking doll (autographed)- $53.73
Larry the Cable Guy talking clip-on (autographed)- $39.07
Bill Engvall talking clip-on (autographed)- $2.75
Jeff Foxworthy talking clip-on (autographed)- $21.87

As you can see, we raised a good bit more money for my surgery... those Blue Collar guys are so awesome for donating all that stuff to me. Thanks Jeff, Bill and Larry... and thanks Gary and Leslie for helping get them all signed... and thanks Sam for putting them all up on auction... and a special thanks to everyone who bid on the items!!!!!

New news from the Geneticist...

Hey!! My geneticist called a little while ago... seems the test results from the "Syndrome Test" (the test they did to find out if what I have (Craniosynostosis) is a result of a syndrome or not)... It's negative!! They will have to do another test when I'm a year old just to be sure, but that's ok with me... cause right now I'm doing great!!!

Love,
Maggi

New news from the Nephrologist...

My Nephrologist called today (she's the doctor that's been monitoring my blood pressure). As you may (or may not) know, I've been off my blood pressure medicine (Captopril) for about two weeks, now. We have a nurse (Nurse Pat) that comes to our house twice a week to check my blood pressure, weight and temperature. When the doctor called today, she said that my blood pressure has been looking so good, that we don't have to have the nurse come out anymore!! That's great... but I'm going to miss Nurse Pat. She's really sweet to me.

So it looks like I'm doing better and better every day, huh? I can't wait to get my surgery over so that I can be done with it!!

Keep praying for me!!

Love,
Maggi

Eating solid foods...

WOW!! I'm such a big girl now!! See me eating my cereal?? Mommy and daddy wanted to see if I would eat from a spoon. I did... and boy was it good! Mommy got me some banana flavored rice cereal... I can't wait to try it!!

Hey, don't forget, you can leave comments on each blog that I leave. Also, you can email me!! I love getting emails from people... especially the sweet ones where people tell me how much they love me and are praying for me and my mommy and daddy!
Talk to you all again soon!!

Love,
Maggi

Doing great!!

Well, Nurse Pat just left... my blood pressure was 76/58 and I now weigh 10lbs 6.5oz!!! I'm growing like a little weed!!

Hey, I just remembered... some friends of my mom and dad have put an auction on eBay for me. Jeff Foxworthy, Bill Engvall and Larry the Cable Guy signed some stuff to be auctioned off for me and it's going well!! You should check out the auction!!! eBay Auctions

I've been "talking"... well, COOing a lot lately... my mom and dad say it's me talking... lol I'm just such a happy baby!!

One month and four days until my surgery... keep me in your prayers, won't you?

Love,
Maggi

Welcome!

Hello!! Thank you for visiting my website and blog!! I've got some cool photos, too...

I'll be leaving messages every week (maybe 4 or 5 a week) so keep my site in your favorites!! Check it regularly... and SAY HELLO every now and again!!

You can leave comments on each blog entry, so feel free to do that. I love communicating with people... especially my mommy and daddy!!

Come back often!!

Love,
Maggi